Supports needed for patients with rare liver disorder
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It's hard for Dennis Bear not to feel completely alone at times.
The Flying Dust First Nation man has a two-and-a-half-year-old daughter named Summer Angel with a very rare disease -one so rare that only 42 people on earth have it.
Since being diagnosed with Hyperornithinemia-hyperammonemia-homocitrullinemia,,better known as Triple H Syndrome, Summer has had to undergo several treatments and countless blood tests.
Triple H Syndrome is a strain of urea cycle disorder, which Dennis explained is a specific dysfunction of the liver.
